This is an amazing clip of Bryce's journey. I first came across Bryce and his Mum Lorraine through a parenting website I visit. Batten Disease is just devastating for families. When we lived in Toowoomba, a family from our church had their (only) two sons die from this condition. It's rare, so it's difficult to attract funds for research to develop a cure.
Bryce's birthday is exactly the same as Aidan's, except that Bryce is one year older. I can't even begin to imagine what it must have been like to think that everything was normal and then discover my child had a fatal disease. I think of his family often and although I don't think they are Christians, I pray for them too.